Medication and Symptom Diary 2026

December 2025

I did not start back on Cimzia because I got a respiratory cold November 10th-December 10th. Then, I met with my infectious disease doctor and asked him to rethink my case from the beginning. He’s requesting an X-ray to rule out MAC (mycobacterium avium complex). He suggested I start a supplement with CoQ10, Alpha Lipoic Acid & Acetyl L-Carnitine to support my mitochondria & see if it helps with my fatigue. He suggested I consider Provigil or Effexor to help with the fatigue. I took Provigil briefly and immediately rejected it because it caused crazy thoughts and made me irritable. I’m a little concerned about trying Effexor or any drug like that again. But I filled the prescription and I may try it for a while. He also suggested a Methyl Folate supplement but I already know that my MTFHR variant is 677C/T and that I probably don’t need to take it unless my homocysteine is low and it is not. But if all the other things he’s asked me to start don’t work then I could experiment with starting that again. The biggest aha moment was he told me to take Valcyclovir for the rest of my life to protect my brain because I had the DZ infection and the EBV infection and both of those are in the herpes family. There is research that shows that 10% of dementia patients have HSV-1 infections and those who took Valtrex were less likely to develop dementia. That was a shocking eye-opener to me since my current concern is brain fog/swelling. However, my follow-up research suggests I do NOT have HSV-1 infection but that my infections were due to the reactivation of other versions of the herpes virus family.

January 2026

Respiratory symptoms continuous. Got allergy testing but no IgE allergies for food, environment, latex, wheat, gluten, dairy.

  • Pause Once-Daily Health Booster because doubles Vitamin E from one-per-day.
  • Add the D3+K2 by UpNourish that I was taking before starting Life Extension supplements, maybe in 2024. Taking while finishing the Life Extension one-per-day because it has some of the same supplements that are in the Once-Daily Health Booster.

March 2026

Left shoulder and neck pain. Usually very bad in the morning and gets better throughout the day. Gave up alcohol for lent so you would think I would feel better, but I don’t. Often feel like I have a hangover when I wake up.

2-200mg doses of Cimzia this month

April 7, 2026

Neck pain comes and goes but now low back pain and SI joint pain are increasing.

2-200mg doses of Cimzia this month

  • STARTED: Akkermansia Muciniphila by Lifeatlas 300 bill afu. Testing if it reduces hunger and cravings.
  • The next thing to consider is adding the Anti-Spike Formula by Glucose Revolution before a meal to see if it reduces my cravings for sugar.

May 2026

Struggling with fatigue and waves of fatigue that can come out of nowhere. They happen even if I’m eating clean & not drinking. Often they come on after I eat so I associate them with digestion issues.

2-200mg doses of Cimzia this month

Cimzia 200mg between IVIG. Sometimes add a 200mg dose a week apart if low back pain is bad.

IVIG monthly Fall 2024 to 2026

Hormones 2016 to 2025

I will move this to a separate post with more of a narrative about my reasons for restarting hormone supplements.

  • 2026 June Oral Estradiol 1.5mg, Oral Progesterone 200 mg, Testosterone cream 20mg/gm from Stonegate rather than HEB. Bleeding during the transition so increased Progesterone to 600 mg, then 400 mg
  • 2025 December: Sublingual dosage same but pulled Progesterone out to a pill again. Added DHEA 5mg
  • 2025 September 13: Sublingual 1x/day. 0.75mg estradiol, .75mg estriol, 200mg Progesterone & 3 mg Testosterone
  • 2025 June 25: started oral sublingual 2xday, before I think I only was taking them 1/day: 0.375mg estradiol, .375mg estriol, 100mg Progesterone & 2 mg Testosterone. Nipples got sore by mid-July & was running out so spread out dosage
  • March Pellets: 87.5 mg testosterone, 6 mg estradiol, continuing 200 mg progesterone at night
  • 2024 November Pellets: 75 mg testosterone, 6 mg estradiol
  • 2024 September Supplemented with rapid dissolve tablet with progesterone, testosterone & estrogen. B/P/T .75 (50:50) 100/2MG RDT-TP
  • 2024 July REDUCED: Progesterone 200 mg at night
  • 2024 June Pellets: REDUCED: 10mg Estradiol, 100 mg Testosterone pellets June 12, by Farmakeio, INCREASED: Progesterone 400 mg at night
  • 2024 March Pellets: 12.5 mg Estradiol, 125 mg Testosterone pellets on March 19, by Farmakeio. Progesterone 200 mg at night, but INCREASED to 600 mg to stop the bleeding
  • 2024 January: Rapid dissolve tablet, progesterone, testosterone & estrogen. B/P/T .75 (50:50) 100/2MG RDT-TP.
  • 2022-23-tried natural supplements
  • 2019-2021 No hormones
  • 2016-2018 Cream hormones

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